Many believe this is an acquired disease, but evidence is growing in favor of a developmental origin, meaning that the disease is there all along, way before the onset of symptoms.
In any case, the puzzle is far from complete.
While this disease can cause severe pain, pain and the disease are not the same thing.
Some women have extensive disease, yet only mild symptoms, while others have minimal disease and crippling pain. Until now, we do not know how or why this is. Something we do know is that pelvic pain can have many origins, so solving one problem may not solve all aspects of the patient's pain.
Keyhole excision surgery to remove all areas of endometriosis is an effective treatment for many women, often resulting in long-lasting relief without recurrence. It is regarded as the "gold standard" of endometriosis treatment. Unfortunately, only a few surgeons around the world offer this surgery and have the skill to treat all forms of the disease, so not all patients are lucky enough to access effective surgery.
For those for whom excision surgery is not available or who have persistent pain despite surgery and other medical therapies, other lifestyle changes may help moderate symptoms and give the woman a sense of control over her situation.
Lifestyle changes can help manage the pain.
Many patients with endometriosis explore dietary changes, take part in support groups to share and gain emotional support, and explore various forms of relaxation and alternative therapies, such as yoga, massage, reiki, acupuncture and meditation. While the pain is very real and has a biological origin, the experience of pain and the ability to deal with it can often be moderated in various ways. Alternative therapies and lifestyle changes will not make the disease go away, but they may make living with this disease easier.
Reducing stress and improving overall mental and physical well-being help us to deal with life's trials and tribulations, including the burden of suffering from a debilitating and often chronic condition.
While in my case, surgical excision of the disease has brought about a vast improvement, when I previously suffered from pain I'd find that what helped the most was distraction, such as going for a rigorous run or a bike ride in the rain.
When the pain was at its worst, however, the best I could do was apply heat, try to relax, breathe deeply, and allow my mind to go some place else; a peaceful, tranquil, safe place as removed as possible from my immediate experience.
For women reading this who are experiencing pelvic pain: while this pain is common, it is not normal.
Often people mistakenly think that something so common must be normal. If your pain is interfering with your daily activities, seek the help of your doctor and be persistent until you get the help you need. You are not to blame for your pain and you are not alone in feeling the way you do. Women all around the world, from all walks of life are dealing with the same problem.
You can be your best advocate by taking the time to research your symptoms, keeping track of them in a pain diary, and finding the best care available to you. There are effective treatments for this disease and even in cases of severe endometriosis there is hope for help and relief.
Another way of taking back control of your situation is by exploring both medical and alternative therapies to achieve the best quality of life you can. Remember: it's your body and your decision as to which treatments you choose. You and your doctor are a team and should work together in deciding upon the best treatment for you.
Lastly, if you have the courage to do so, turn this experience into something positive by educating others (your friends, family, and physicians) about this misunderstood disease so that other girls and women need not suffer in silence and can live out their dreams.
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